Video: Baby with Rare Disease Inspires Others with His Remarkable Resilience and Energy

A Chinese couple contacted everywhere hoping to find a cure for their 13-month-old child with a strange disease that startled everyone who looked at the baby’s body.
Little girl Vien Vien has a pitiful disease that causes her body to be stunted

Baby girl Vien Vien (13 months old) is the second child of a young couple in Shenzhen. At birth, the baby weighed only 0.05 kg and was 10 cm long. Currently, with severe malnutrition, even though he is over 1 year old, the baby only weighs 2.9 kg and is 50 cm tall. Anyone who sees Vien Vien will be startled by the baby’s appearance.

Every day, she only sleeps about 2 hours

Vien Vien’s parents said she breastfed very little and absorbed a little formula through her nose. Besides being able to express joy through her eyes or through a forced smile, Vien Vien cannot make any noise at all. Every day, she only sleeps about 2 hours. Not only that, Vien Vien’s skin is very susceptible to dryness, so parents have to regularly massage and apply ointment to the baby after each bath.

Parents apply ointment to the baby after each bath.

Her parents spent 100,000 yuan on doctors but still could not find the cause or treatment for the strange disease that Vien Vien suffered from. They are actively reaching out to the media hoping to find medical experts who can treat this disease.

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