In 2005, they welcomed their first child – baby Tran Thi Phuong Thao. However, that happiness did not last long when they discovered that baby Thao had unusually shiny skin, peeling off into patches, and then oozing with fresh blood unlike anyone else’s.

 

In April 2014, they decided to give birth to their third child, a boy named Tran Hong Minh. But continuing again, Dao seemed to collapse when her child was born with the shape of her sister. The whole body is covered with wrinkled, dry and cracked skin. Through the gap in the skin, blood spurts shot out, making the boy cry. The disease causes the child’s upper eyelid to turn up and turn red, forming a very scary-looking circle.

The miserable mother said that there is no cure for her children’s illness, so every month they carry their children to the Central Dermatology Hospital to buy medicine according to the doctor’s prescription, and every day Ms. Dao I still have to buy skin-cooling lotion to avoid chapping. In the summer, the weather is hot, sweat cannot escape, and the sisters’ faces and bodies turn red, so they have to bathe at least 10 times a day and always wear towels on their heads to cool their bodies. In dry weather, the skin layers crack and bleed, causing pain to the baby’s body.

Despite being so sick, little Phuong Thao always wanted to go to school like her peers. “When he was 5 years old, I took him to kindergarten. However, when he went to class, the other children were very scared and often called him “ghost”. Some were so scared that they got sick. I was afraid that my child would feel sorry for himself, partly because I was worried that it would affect my friends and family and not let me go to school anymore,” Ms. Dao recalled.